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January
31

DysNet Weekly 31st January 2014

Posted on Friday 31st January, 2014

Hello all,

...  Read further about DysNet Weekly 31st January 2014


January
27

DysNet Weekly 24th January

Posted on Monday 27th January, 2014

Hi all,

...  Read further about DysNet Weekly 24th January


January
17

DysNet Weekly 17th January 2014

Posted on Friday 17th January, 2014

Hello all,

...  Read further about DysNet Weekly 17th January 2014


January
17

Urgent request: clinical pictures and x-rays for scientific publication

Posted on Friday 17th January, 2014

Professor Mundlos from Charité and Max Planck Institute, Berlin, asks for pictures of typical thalidomide damages, both clinical photographs and x-rays. 

...  Read further about Urgent request: clinical pictures and x-rays for scientific publication


January
16

Patients Know Best Enables European-Wide Specialist Care Access For Rare Disease Patients

Posted on Thursday 16th January, 2014

Patients Know Best (PKB) has teamed up with EDRIC, a European-wide membership organisation for people with Dysmelia - congenital limb differences - to help Dysmelia patients obtain the very best care wherever they live in the European Union (EU). 

...  Read further about Patients Know Best Enables European-Wide Specialist Care Access For Rare Disease Patients


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