EDRIC Board

The governing board and management team of EDRIC include some of the people with the most experience anywhere in addressing the health needs of dysmelic patients, and they are actively supported by the world's foremost organisations connected with this subject.

Chairman: Geoff Adams-Spink


Geoff draws upon more than half a century of lived experience with limb and other impairments cause by thalidomide.  He is an experienced communicator, campaigner and an acknowledged expert on disability affairs.  Since leaving the BBC in 2011, he has run his own company, Adams-Spink Ltd, which markets his services as an independent disability equality consultant, broadcaster, writer and public speaker.

 

Treasurer & Deputy Chairman: Björn Håkansson


Björn is the President of FfdN (Föreningen för den Neurosedynskadade), the Swedish group for thalidomide survivors.  He was born with disabilities caused by thalidomide.  Björn is an experienced team leader and manager of a dysmelia patient group.  He also co-founded the Ex-Center - Europe's only specialist centre solely devoted to supporting the health needs of dysmelia patients. 





 

Secretary: Monika Eisenberg-Geginat


Monika is one of almost 3000 German thalidomide survivors.  Formerly, she was the head teacher of a school for disabled children and now works as a family therapist.  She specialises in the protection of disabled children and represents the interests of disabled employees in the town of Wesseling, Germany.

 

Board Member: Charlotte Fielder


Charlotte is responsible for online safety for EDRIC.  She was born with a congenital absence of the hand and shortened forearm.  She is the author of Shared Experiences - The Experience of Having & Parenting Children With Upper Limb Deficiencies.  Charlotte is a tireless fundraiser for Reach.  Until recently she was a manager at a UK Government agency.  She is a commentator and speaker about living with and learning from limb difference.

 

Board Member: Gernot Stracke


Gernot is a German businessman and a thalidomide survivor who serves as a board member of HICOHA (Hilfswerk für Contergangeschädigte e.V.  in Hamburg and Schlewsig-Holstein) - a German thalidomide organisation.  Gernot is married and has two children.  He is a sales manager for an international consulting company with a strong focus on IT-solutions and is also an instructor for speech recognition systems for people with limb deficiency and other physical disabilities.

 

Board Member: Michaela Moik


Michaela is a thalidomide survivor and one of the founders of the Austrian Thalidomide self-help group, Selbsthilfegruppe der Contergan- und Thalidomidgeschädigten Österreichs.  She worked as a social worker in the Youth Department of Vienna and has three children.

 

Board Member: Salvatore Giambruno


Salvatore is a long-time board member and past president of Raggiungere, , the Italian Association for children with limb deficiencies, and past president of LEDHA, a federation of 32 associations representing various disability groups in Italy.  He works as a sales manager for the touch systems division of a large international corporation.  He is the parent of a girl with dysmelia.

 

EDRIC Officers

Chief Operating Officer: Tobias Arndt


Tobias is an IT expert and researcher with a background in online portals.  As a writer he published a range of articles in major magazines.  He is the author of books on electronic commerce and "b2b Marketplaces".  Tobias has supported thalidomide projects and campaigns in Britain, Germany and Belgium since 2007.

 

Media Manager: Laura Campbell


Laura is an experienced communications professional and runs her own social media and PR agency, Dangerous Minds Creative.  She is committed to promoting EDRIC's message through DysNet and its associated social and traditional media channels.

 

Medical Co-ordinator: Dr Elizabeth Horak MD, DPhil


Elizabeth is a medical consultant with a background in research and teaching; she has been a lecturer at the University of Oxford, with many publications in international medical journals.  Now she specialises in incurable conditions, where the focus is to improve the quality of life.  With an interest in psycho-social matters, especially their connection with medical problems, Elizabeth is also a trained psychotherapist.