Many individuals with dysmelia, along with their families and support groups across the world, have made discoveries about great resources, adaptations and medical treatments to help themselves, their children or their patients in managing their condition.
DysNet wants to bring all that knowledge together in an accessible database so that everyone who needs to find out this type of information doesn't have to spend hours searching. Why reinvent the wheel over and over, when someone in a similar position somewhere else in the world can offer a solution?
We've also launched a community forum on RareConnect that is a safe, moderated environment to share experiences, knowledge and ideas with other people in your position across the globe.
If we haven't yet made contact with you or your group or organisation - don't wait!, Contact Us now and join the DysNet global community!
Although we were established to assist people with congenital loss, we also welcome those who have lost limbs through amputation as a result of illness or trauma.
Join DysNet now
Most Recent Posts
15 Most Recent Posts
- DysNet Weekly 7th March
- DysNet Weekly 28th February
- DysNet Weekly 21st February 2014
- Rare Disease Day - 28th February 2014
- DysNet Weekly 14th February
- Appello ai volontari per aiutare con studio accademico
- DysNet Weekly 7th February 2014
- Amazing Amputee Football video
- Appel à bénévoles pour aider avec les études universitaires
- Call for volunteers to help with academic study
- DysNet Weekly 31st January 2014
- DysNet Weekly 24th January
- DysNet Weekly 17th January 2014
- Urgent request: clinical pictures and x-rays for scientific publication
- Patients Know Best Enables European-Wide Specialist Care Access For Rare Disease Patients