Our Vision


The internet has made the world a much smaller place.  Now, people from a wide geographical area who have similar interests, can link up and share support and experiences.  But while our research has shown that in some countries, such as the US and Germany, there are a number of small and thriving support groups for, primarily, parents of children with limb differences, adults and dysmelic people in other countries are not as well served. 

As an inclusive organisation, we'd like to bring ALL these groups together so that a wider section of the Dysmelia community across the world can find the information and support that they need.

Aims and Objectives


DysNet is run by EDRIC (European Dysmelia Reference information Centre), an organisation set up by a group of Thalidomiders from across Europe. 

The DysNet project is a way to preserve the knowledge they have gained over the years, that has enabled them not only to lead independent lives but, in many cases, to achieve things that most able-bodies people would find difficult. 

It is in this 'can-do' spirit that the ambitious aims of DysNet, to share knowledge, signposting and experiences, have been established.

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