DysNet and Rare Disease Day 2013
Rare Disease Day is coming up on 28 February 2013.
Dysmelia of all types are rare diseases and we're looking for patient stories to help us raise the profile of limb deficiency for Rare Disease Day.
If you would like to share your story with us, please get in touch.
About Rare Disease Day
February 28, 2013 marks the sixth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 24 European countries. EDRIC is a member of EURORDIS.
On and around this day hundreds of patient organisations from more than 60 countries worldwide are planning awareness-raising activities converging around the slogan "Rare Disorders without Borders"
Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand!
Find out more about Rare Disease Day here
European Limb Loss Day 2012
2012 is the second year European Limb Loss Day is being held, under the umbrella of the UN International Day for Persons With Disabilities.
Theme for 2012:
Removing barriers to create an inclusive and accessible society for all.
For people with limb loss, this may mean something quite different for people with other types of disabilities - for example access to suitable prosthetics, mobility and accessibility equipment; access to expert medical care; access to rehabilitation or to occupational or physical therapy
If you or someone in your family or who care for is living with a limb deficiency, why not get involved? If you are involved with an organisation that helps people with limb loss, whether congenital or acquired through illness or trauma, this is your day to shout about what you do!
Take The Limb Loss Survey!
Visit the European Limb Loss Day website