Most Recent comments

3 recent comments

• Geoff
  2013-05-13 12:14:00
•  
• Ivo Cerckel
  2013-05-12 11:34:42
•  
• Gernot Stracke
  2013-05-10 08:19:17
•  

News

• International Limb Difference organisation offers cautious welcome to Grunenthal apology
•  
• Apologies, Athletics and One-armed Flossing in the DysNet Digest
•  
• Participation and quality of life in children and adolescents with congenital limb deficiencies: A narrative review
•  
• Global self-help network launched to support people with limb differences
•  
• Welcome to DysNet! We are live!
•  
• Welcome to Our World
•  
• My story: from DysNet chairman Geoff Adams-Spink
•  
• The reasons behind DysNet - A video
•  
• Limb difference and rare disease news from this week - check out our round up!
•  
• Support from the UK Associate Parliamentary Limb Loss Group for DysNet:
•  
• DysNet brings you limb difference and rare disease from this week
•  
• News from the Rare Disease and Limb Difference community this week
•  
• Guidelines launched to ensure air travel rights for people with disabilities are observed
•  
• Limb Difference news and rare disease articles this week
•  
• DysNet brings you the best of disability and rare disease news
•  
• The Dysmelic Doctor with a safety net for marginalised
•  
• Limb Difference and Amputee news this week
•  
• Catch up on disability, rare disease and limb difference stories you may have missed
•  
• Theme Park discrimination, accessibility and Paralympics, all in one DysNet post!
•  
• Multi-million dollar compensation for Australian thalidomide survivor
•  
• Pistorious, payouts and great posts - our DysNet best of the week's news
•  
• Scandal reignited, prosthetics progress and amputee athletics
•  
• Sabine Becker - the cost of recovery
•  
• Meet the Superhumans - the trailer
•  
• Olympic inspiration and other unmissable limb loss and rare disease news
•  
• Artist Alison Lapper to become patron of European Limb Difference Organisation, EDRIC.
•  
• Paralympic profiles, painter patrons and Poland's progress
•  
• Spare Parts - an exhibition of prosthetics art
•  
• UK charity fundraiser appointed to the board of European disability organisation
•  
• DysNet patron, Alison Lapper, featured in Paralympic opening ceremony spectacular
•  
• Paralympian Opinion and the DysNet Digest
•  
• The DysNet Limb Difference Digest
•  
• DysNet Digest: Innovation, shared stories and a man on a mission
•  
• To Malmo we go for the EDRIC Limb Difference Membership Meeting
•  
• Out on a Limb - Living Without Support
•  
• The EDRIC meeting in Sweden: a quantum leap forward
•  
• Still fighting for help - Thalidomide Austria
•  
• The DysNet Digest: Inspiring stories, Interesting news
•  
• Limb Difference charity, Reach, is supporting European Limb Loss Day
•  
• Limb Difference in Italy - Raggiungere's Claudio Pirola talks about their work
•  
• Barrier-free living exhibited at Rehacare
•  
• UK Health Secretary, Jeremy Hunt backs European Limb Loss Day
•  
• When DysNet went to NAIDEX
•  
• Prosthetics, Accessibility and Innovation in the DysNet Digest
•  
• First UK Thalidomide Memorial unveiled
•  
• Paralympics celebrated athletes with limb differences but more must be done to improve lives of everyone with limb loss
•  
• EDRIC joins The Associate Parliamentary Limb Loss Group
•  
• Inspirational new patrons welcomed by international limb difference organisation
•  
• DysNet at SpotsFest with Paralympics GB!
•  
• Accessibility at Theme Parks - EDRIC visits Disneyland Paris
•  
• New website and survey launched for European Limb Loss Day
•  
• EDRIC welcomes ten year funding grant for English thalidomide survivors from UK government
•  
• Merry Christmas from DysNet!
•  
• The Reach Family Weekend 2012
•  
• TAR Syndrome - a very rare disease
•  
• EDRIC Newsletter out now!
•  
• The So What campaign, featured on Born Just Right
•  
• Armless pilot, Jessica Cox, to inspire disabled children in Ethiopia
•  
• DysNet Weekly News
•  
• DysNet Weekly Round-Up
•  
• EDRIC announces appointment of new Chief Operating Officer
•  
• New Channel 4 series looking for parents-to-be with mobility issues or other disabilities
•  
• EDRIC at Naidex
•  
• Bringing up a Thalidomider in the 1960\'s
•  
• DysNet Weekly
•  
• Montreal is for Arms
•  
• EDRIC reaction to UK Home Office display of ignorance when dealing with dysmelia
•  
• AbilityNet - Look No Hands!
•  
• DysNet Weekly 10/5/13
•  
• Felix Klieser - An amazing French Horn player born with Amelia
•  
• DysNet Weekly 17/5/13
•  

Article

• Support from the UK Associate Parliamentary Limb Loss Group for DysNet:
•  
• Spotlight on: Jessica Cox, black belt, pilot, speaker
•  
• Unreasonable Assumptions
•  
• Reach - Association for Children with Upper Limb Deficiency
•  
• Spotlight on: Pianist, Nicholas McCarthy
•  
• The Dysmelic Doctor with a safety net for marginalised
•  
• Phantom Finger Points To Secrets In The Human Brain
•  
• Raggiungere - The Italian association for Limb Differences
•  
• Raggiungere : Associazione Italiana per bambini con malformazioni agli arti
•  
• Theme Parks called on to clarify their accessibility policies for people with limb differences
•  
• The EX-Center, Sweden's innovative rehab centre
•  
• The inspirational Douglas Bader Foundation
•  
• It's Good to Talk - by Reach UK
•  
• Here come the Limb Difference Paralympians, part one
•  
• Paralympians with a (limb) difference, Part 2
•  
• Paralympians with a (limb) difference - part three
•  
• Spare Parts - an exhibition of prosthetics art
•  
• The technical team that keeps the Paralympians well oiled
•  
• DysNet patron, Alison Lapper, featured in Paralympic opening ceremony spectacular
•  
• Keep Paralympic Fever going for the Junior Games At Stoke Mandeville!
•  
• Poland Syndrome Documentary and Me, by Woody Bavota
•  
• Five Fingers, Ten Toes. Raising a Child Born With a Limb Difference
•  
• Sabine Becker - my road to recovery from stroke
•  
• Out on a Limb - Living Without Support
•  
• The EDRIC meeting in Sweden: a quantum leap forward
•  
• Still fighting for help - Thalidomide Austria
•  
• Limb Difference in Italy - Raggiungere's Claudio Pirola talks about their work
•  
• When DysNet went to NAIDEX
•  
• Prosthetics access in the UK - report
•  
• First UK Thalidomide Memorial unveiled
•  
• EDRIC joins The Associate Parliamentary Limb Loss Group
•  
• Reach - a sparkling event showing the power of connecting
•  
• Accessibility at Theme Parks - EDRIC visits Disneyland Paris
•  
• The Alternative Limb Project - prosthetic covers that dazzle!
•  
• The Reach Family Weekend 2012
•  
• A rare disease doesn't stop DJ Dan
•  
• TAR Syndrome - a very rare disease
•  
• What's next for DysNet - big plans for 2013
•  
• EDRIC Member profile: Hicoha
•  
• My son's Poland Syndrome - Sam's story
•  
• Online safety: Amputee Devotees, Disability Trolls and Fakers
•  
• Online safety: Amputee Devotees - Part Two
•  
• Online safety: Top tips for protecting yourself from unwanted attention
•  
• A great children's book if your child has a visible difference
•  
• Rare Disease Day: Rio's fundraising for his Paralympic prosthetics
•  
• Ulnar deficiency: a blog from surgeon, Dr Charles Goldfarb
•  
• Living without limbs frustrates Joanne, but doesn\'t dampen her ambition
•  
• Notre experience dans l\'emission des maternelles.
•  
• Connecting across borders with the DysNet RareConnect Forum
•  
• Bringing up a Thalidomider in the 1960\'s
•  
• Montreal is for Arms
•  
• Felix Klieser - An amazing French Horn player born with Amelia
•  

Press Release

• International Limb Difference organisation offers cautious welcome to Grunenthal apology
•  
• Global self-help network launched to support people with limb differences
•  
• DysNet Chairman, Geoff Adams-Spink, appointed to Board of Disability Rights UK
•  
• Thalidomide survivor honoured with opportunity to carry Olympic torch
•  
• Theme Parks called on to clarify their accessibility policies for people with limb differences
•  
• Les parcs d\'attraction sont appelés à clarifier leurs conditions d\'accessibilité pour les personnes atteintes de malformation des membres
•  
• DysNet Theme Park Press Release - French Translation
•  
• Artist Alison Lapper to become patron of European Limb Difference Organisation, EDRIC.
•  
• UK charity fundraiser appointed to the board of European disability organisation
•  
• Paralympics celebrated athletes with limb differences but more must be done to improve lives of everyone with limb loss
•  
• Inspirational new patrons welcomed by international limb difference organisation
•  
• New website and survey launched for European Limb Loss Day
•  
• EDRIC welcomes ten year funding grant for English thalidomide survivors from UK government
•  
• Three further board members appointed to EDRIC Limb Deficiency organisation
•  
• EDRIC announces appointment of new Chief Operating Officer
•  
• EDRIC reaction to UK Home Office display of ignorance when dealing with dysmelia
•  

Event

• EDRIC Membership Meeting Sept 2012
•  
• New website and survey launched for European Limb Loss Day
•