EDRIC Newsletter out now!

Most Recent comments

3 recent comments

• Geoff
  2013-05-13 12:14:00
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• Ivo Cerckel
  2013-05-12 11:34:42
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• Gernot Stracke
  2013-05-10 08:19:17
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News

• International Limb Difference organisation offers cautious welcome to Grunenthal apology
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• Apologies, Athletics and One-armed Flossing in the DysNet Digest
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• Participation and quality of life in children and adolescents with congenital limb deficiencies: A narrative review
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• Global self-help network launched to support people with limb differences
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• Welcome to DysNet! We are live!
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• Welcome to Our World
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• My story: from DysNet chairman Geoff Adams-Spink
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• The reasons behind DysNet - A video
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• Limb difference and rare disease news from this week - check out our round up!
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• Support from the UK Associate Parliamentary Limb Loss Group for DysNet:
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• DysNet brings you limb difference and rare disease from this week
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• News from the Rare Disease and Limb Difference community this week
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• Guidelines launched to ensure air travel rights for people with disabilities are observed
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• Limb Difference news and rare disease articles this week
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• DysNet brings you the best of disability and rare disease news
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• The Dysmelic Doctor with a safety net for marginalised
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• Limb Difference and Amputee news this week
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• Catch up on disability, rare disease and limb difference stories you may have missed
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• Theme Park discrimination, accessibility and Paralympics, all in one DysNet post!
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• Multi-million dollar compensation for Australian thalidomide survivor
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• Pistorious, payouts and great posts - our DysNet best of the week's news
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• Scandal reignited, prosthetics progress and amputee athletics
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• Sabine Becker - the cost of recovery
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• Meet the Superhumans - the trailer
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• Olympic inspiration and other unmissable limb loss and rare disease news
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• Artist Alison Lapper to become patron of European Limb Difference Organisation, EDRIC.
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• Paralympic profiles, painter patrons and Poland's progress
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• Spare Parts - an exhibition of prosthetics art
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• UK charity fundraiser appointed to the board of European disability organisation
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• DysNet patron, Alison Lapper, featured in Paralympic opening ceremony spectacular
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• Paralympian Opinion and the DysNet Digest
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• The DysNet Limb Difference Digest
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• DysNet Digest: Innovation, shared stories and a man on a mission
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• To Malmo we go for the EDRIC Limb Difference Membership Meeting
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• Out on a Limb - Living Without Support
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• The EDRIC meeting in Sweden: a quantum leap forward
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• Still fighting for help - Thalidomide Austria
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• The DysNet Digest: Inspiring stories, Interesting news
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• Limb Difference charity, Reach, is supporting European Limb Loss Day
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• Limb Difference in Italy - Raggiungere's Claudio Pirola talks about their work
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• Barrier-free living exhibited at Rehacare
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• UK Health Secretary, Jeremy Hunt backs European Limb Loss Day
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• When DysNet went to NAIDEX
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• Prosthetics, Accessibility and Innovation in the DysNet Digest
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• First UK Thalidomide Memorial unveiled
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• Paralympics celebrated athletes with limb differences but more must be done to improve lives of everyone with limb loss
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• EDRIC joins The Associate Parliamentary Limb Loss Group
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• Inspirational new patrons welcomed by international limb difference organisation
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• DysNet at SpotsFest with Paralympics GB!
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• Accessibility at Theme Parks - EDRIC visits Disneyland Paris
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• New website and survey launched for European Limb Loss Day
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• EDRIC welcomes ten year funding grant for English thalidomide survivors from UK government
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• Merry Christmas from DysNet!
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• The Reach Family Weekend 2012
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• TAR Syndrome - a very rare disease
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• EDRIC Newsletter out now!
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• The So What campaign, featured on Born Just Right
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• Armless pilot, Jessica Cox, to inspire disabled children in Ethiopia
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• DysNet Weekly News
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• DysNet Weekly Round-Up
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• EDRIC announces appointment of new Chief Operating Officer
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• New Channel 4 series looking for parents-to-be with mobility issues or other disabilities
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• EDRIC at Naidex
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• Bringing up a Thalidomider in the 1960\'s
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• DysNet Weekly
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• Montreal is for Arms
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• EDRIC reaction to UK Home Office display of ignorance when dealing with dysmelia
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• AbilityNet - Look No Hands!
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• DysNet Weekly 10/5/13
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• Felix Klieser - An amazing French Horn player born with Amelia
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• DysNet Weekly 17/5/13
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Article

• Support from the UK Associate Parliamentary Limb Loss Group for DysNet:
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• Spotlight on: Jessica Cox, black belt, pilot, speaker
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• Unreasonable Assumptions
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• Reach - Association for Children with Upper Limb Deficiency
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• Spotlight on: Pianist, Nicholas McCarthy
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• The Dysmelic Doctor with a safety net for marginalised
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• Phantom Finger Points To Secrets In The Human Brain
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• Raggiungere - The Italian association for Limb Differences
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• Raggiungere : Associazione Italiana per bambini con malformazioni agli arti
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• Theme Parks called on to clarify their accessibility policies for people with limb differences
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• The EX-Center, Sweden's innovative rehab centre
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• The inspirational Douglas Bader Foundation
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• It's Good to Talk - by Reach UK
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• Here come the Limb Difference Paralympians, part one
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• Paralympians with a (limb) difference, Part 2
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• Paralympians with a (limb) difference - part three
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• Spare Parts - an exhibition of prosthetics art
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• The technical team that keeps the Paralympians well oiled
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• DysNet patron, Alison Lapper, featured in Paralympic opening ceremony spectacular
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• Keep Paralympic Fever going for the Junior Games At Stoke Mandeville!
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• Poland Syndrome Documentary and Me, by Woody Bavota
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• Five Fingers, Ten Toes. Raising a Child Born With a Limb Difference
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• Sabine Becker - my road to recovery from stroke
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• Out on a Limb - Living Without Support
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• The EDRIC meeting in Sweden: a quantum leap forward
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• Still fighting for help - Thalidomide Austria
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• Limb Difference in Italy - Raggiungere's Claudio Pirola talks about their work
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• When DysNet went to NAIDEX
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• Prosthetics access in the UK - report
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• First UK Thalidomide Memorial unveiled
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• EDRIC joins The Associate Parliamentary Limb Loss Group
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• Reach - a sparkling event showing the power of connecting
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• Accessibility at Theme Parks - EDRIC visits Disneyland Paris
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• The Alternative Limb Project - prosthetic covers that dazzle!
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• The Reach Family Weekend 2012
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• A rare disease doesn't stop DJ Dan
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• TAR Syndrome - a very rare disease
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• What's next for DysNet - big plans for 2013
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• EDRIC Member profile: Hicoha
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• My son's Poland Syndrome - Sam's story
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• Online safety: Amputee Devotees, Disability Trolls and Fakers
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• Online safety: Amputee Devotees - Part Two
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• Online safety: Top tips for protecting yourself from unwanted attention
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• A great children's book if your child has a visible difference
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• Rare Disease Day: Rio's fundraising for his Paralympic prosthetics
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• Ulnar deficiency: a blog from surgeon, Dr Charles Goldfarb
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• Living without limbs frustrates Joanne, but doesn\'t dampen her ambition
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• Notre experience dans l\'emission des maternelles.
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• Connecting across borders with the DysNet RareConnect Forum
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• Bringing up a Thalidomider in the 1960\'s
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• Montreal is for Arms
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• Felix Klieser - An amazing French Horn player born with Amelia
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Press Release

• International Limb Difference organisation offers cautious welcome to Grunenthal apology
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• Global self-help network launched to support people with limb differences
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• DysNet Chairman, Geoff Adams-Spink, appointed to Board of Disability Rights UK
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• Thalidomide survivor honoured with opportunity to carry Olympic torch
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• Theme Parks called on to clarify their accessibility policies for people with limb differences
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• Les parcs d\'attraction sont appelés à clarifier leurs conditions d\'accessibilité pour les personnes atteintes de malformation des membres
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• DysNet Theme Park Press Release - French Translation
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• Artist Alison Lapper to become patron of European Limb Difference Organisation, EDRIC.
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• UK charity fundraiser appointed to the board of European disability organisation
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• Paralympics celebrated athletes with limb differences but more must be done to improve lives of everyone with limb loss
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• Inspirational new patrons welcomed by international limb difference organisation
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• New website and survey launched for European Limb Loss Day
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• EDRIC welcomes ten year funding grant for English thalidomide survivors from UK government
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• Three further board members appointed to EDRIC Limb Deficiency organisation
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• EDRIC announces appointment of new Chief Operating Officer
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• EDRIC reaction to UK Home Office display of ignorance when dealing with dysmelia
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Event

• EDRIC Membership Meeting Sept 2012
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• New website and survey launched for European Limb Loss Day
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