European Congenital Limb Difference Network (EDRIC) Launches Multi-Lingual Version of its DysNet Website
18/09/13 - The European Dysmelia Reference Information Centre (EDRIC) has just launched a multi-lingual version of its popular DysNet website. The site is now available in the five major EU languages: English, German, Spanish, French and Italian.
The organisation - a confederation of groups representing people affected by congenital limb difference or dysmelia - launched its English language website in April 2012 and already attracts 1600 unique visitors per week. DysNet - The Dysmelia Network - also has a presence on all the main social media channels.
Geoff Adams-Spink, Chairman of EDRIC said:
"This is a significant milestone in the development of EDRIC that will enable us to reach out to more non-English speakers - we are very excited about attracting visitors and interacting with followers from a wide range of countries.
It was always our plan to make our network available and accessible to speakers of all five EU languages. EDRIC will be present at Europe's largest disability exhibition - Rehacare in Düsseldorf - and we are now confident that potential advertisers will find our offer so much more attractive and compelling."
As well as running DysNet, EDRIC is planning to launch a forum for experts in the field of dysmelia in 2014 and eventually, a mechanism whereby the peer-group network and expert forum can interact.
"Our vision is to give everyone affected by the number of rare conditions that come under the generic term, dysmelia, the most up-to-date, accurate and reliable information about their condition. At present, people living with rare conditions like dysmelia experience significant health inequalities - something that we are committed to overcoming," said Adams-Spink.
Notes for editors:
- For further information and to arrange interviews, contact EDRIC's Media Manager, Caroline George on +44 7715 559125 or firstname.lastname@example.org
- EDRIC - the European Dysmelia Reference Information Centre - is a pan-European, not-for-profit organisation registered in Sweden. It is governed by a board of seven individuals, six of whom have lived experience of Dysmelia.
- EDRIC has 23 member organisations in 13 countries.
- Dysmelia is a generic term for a group of extremely rare conditions - for example thalidomide syndrome, Poland syndrome and polydactyly. The DysNet website has a full list of conditions.
- DysNet is on Facebook, Twitter, LinkedIn, YouTube and Google+. It also has a multi-lingual (EN, DE, IT, FR, ES) forum, RareConnect, hosted by EURORDIS and NORD, the European and North American rare disease umbrella bodies.
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