February
6

My son's Poland Syndrome - Sam's story

Posted on Wednesday 6th February, 2013

Sam Fillingham & sonMy gorgeous son was born in 2008 and he is my angel.  We had a difficult birth and spent quite a few days in hospital. 
It was during this stay in hospital that I discovered that my beautiful bundle of joy had two fingers that were joined together.  To say I was heartbroken is a an understatement. 

Through the fog and haze of being a new mum and recovering from a tough birth, I went into shock.  It was hard to believe that I was in hospital and the medical staff hadn't found this but I had. 

A paediatrician visited and said something along the lines of it's nothing to worry about, we'll get a surgeon referral and get the fingers separated.  It sounded simple, so it was vaguely reassuring.  At around 6 weeks old we went to see a surgeon, we walked in and he took one look at my son's hand and asked to see his chest, he knew straight away that his chest was also affected. 

Read Sam's story in full on our RareConnect community. 


Tags: Poland's Syndrome RareConnect rare disease dysmelia limb difference Article Article Article

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