TAR Syndrome - a very rare disease
Daniel Copeland, from Liverpool in the UK is a student and a DJ. He is only the 18th person in the country to have been born with TAR Syndrome, which is short for Thrombocytopenia with Absent radius.
Daniel is part of a small support group for people with TAR Syndrome and the group has joined DysNet's parent organisation, EDRIC, to join other dysmelia & limb loss groups and help make their voice louder.
Here, he talks about his life and work with the TAR Syndrome Support Group.
Tags: TAR Syndrome dysmelia limb difference rare disease EURORDIS RareConnect News Article News Article