November
13

TAR Syndrome - a very rare disease

Posted on Tuesday 13th November, 2012

Daniel Copeland, from Liverpool in the UK is a student and a DJ.  He is only the 18th person in the country to have been born with TAR Syndrome, which is short for Thrombocytopenia with Absent radius. 
Daniel is part of a small support group for people with TAR Syndrome and the group has joined DysNet's parent organisation, EDRIC, to join other dysmelia & limb loss groups and help make their voice louder. 

Here, he talks about his life and work with the TAR Syndrome Support Group. 


Tags: TAR Syndrome dysmelia limb difference rare disease EURORDIS RareConnect News Article News Article

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