WBDD Press Release - EN

Posted on Tuesday 3rd March, 2015



EDRIC Joins Forces with Other Global Players to Mark the First World Birth Defects Day

EDRIC is part of a network of 12 leading global health organisations that announce the first annual World Birth Defects Day, to be observed March 3, 2015.  The purpose of this observance is to raise awareness about the occurrence of birth defects, develop and implement primary prevention pro- grammes, and expand referral and care services for all persons with birth defects. 

Birth defects are a common, costly, and critical public health challenge.  For example, birth defects occur in 1 in every 33 infants.  Birth defects are the leading cause of death in infants and young children.  And, for babies who survive and live with these conditions, birth defects increase their risk of long-term disabilities. 

EDRIC Chairman Geoff Adams-Spink said:

"Our collective vision is for every child to be born with the best health possible and the potential for a full and productive life."

"Birth defects affect not only individuals and their families, but also have an impact upon communi- ties and all of us."

The WBDD organisers urge the media to promote this day by telling a story about someone living with a birth defect, how birth defects have affected families, or explaining how women can lower their risk of having a baby with a birth defect. 


Notes for Editors:

· For further information or to arrange an interview with a spokesperson, please contact Geoff Adams-Spink (EDRIC Chairman) or on +447711 898787. 
· WBDD is supported by considerable social media activity on Twitter: #WorldBDDay will be used extensively
· If you are interested in developing a story or other piece on World Birth Defects Day and/ or global birth defects prevention, spokespersons from each of the organisations within our network are available to speak to you. 
· In addition to EDRIC, the following organisations are taking part in World Birth Defects Day
-CDC (US Centre for Disease Control and Prevention)
-ECLAMC (Estudio Colaborativo Latino Americano de Malformaciones Congénitas)
-EUROCAT (European Surveillance of Congenital Anomalies)
-IFSBH (International Federation for Spina Bifida and Hydrocephalus)
-ICBDSR (International Clearinghouse for Birth Defects Surveillance and Research)
-March of Dimes (US organisation for the prevention of birth defects and infant mortality)
-Alianza Neonatal Alliance (The Latin America and Caribbean Newborn Health Alliance)
-NBDPN (National Birth Defects Prevention Network) US-based
-Organización Panamericana de la Salud (part of the WHO)
-PMNCH (Partnership for Maternal, Newborn and Child Health) Swiss-based
-WHO SE Asia
· EDRIC (European Dysmelia Reference Information Centre) is an international umbrella
body for congenital limb difference.  It has 29 member organisations in 20 countries
around the world.  It is a Swedish-registered NGO. 
· Dysmelia is the generic terms used to describe a variety of extremely rare conditions

Tags: Press Release World Birth Defects Day Pregnancy Malformation Limb Difference Press Release


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