After a study visit in Portugal, other interesting meetings at the Ministry of the Interior, at the Parliament at The Hague and at the...

DYSNET’S CHAIRMAN Claudio Pirola and the MANAGING DIRECTOR of Prensilia (BioRobotics) Engineer Francesco Clemente,  in a short dialogue...

Avril Daly presented the impressive activity report of Rare Disease International - more than 700 events - Rare Barometer - Advocating...

last week. Fil rouge: disability. Happy to have offered my contributions to - Milano Civil Week representing  https://lnkd.in/d3wC-GG8 -...

DYSNET’S CHAIRMAN Claudio Pirola will speak on Sunday, May 11th at 3:00 pm at "Scuola di Robotica" in Genoa  https://lnkd.in/dKupCrD   in...

DYSNET’S CHAIRMAN  Claudio Pirola in the context of the event “Civil Week Milano”   https://civilweek-vivere.it/eventi/rapporti-tra-profi...

DysNet’s Chairman Claudio Pirola took part in CEF (Conference of European Federations) organized by EURORDIS in Paris last October 16-17,...

DYSNET’S GENERAL ASSEMBLY – Don’t miss the important appointments DYSNET organized for August 1during the General Assembly which will...

DYSNET represented by the Chair Claudio Pirola and the COO Tobias Arndt took part at EURORDIS’ conference in BRUSSELS last December 12...

#PARIS, October 7, 2023 – Many thanks to ’S Seine et Marne (including Paris Ile-de-France) Chairman and Board Member of #ASSEDEA who...

#PARIS, October 7, 2023 – Many thanks to Franck Brouillard, #HANDISPORT’S Seine et Marne (including Paris Ile-de-France) Chairman and...

IT WAS A HONOUR for DysNet’s Board to meet in a video conference Mr. Luca Sangiorgi, Director Rare Bone Disorders Dept. and Coordinator...

ARTIFICIAL INTELLIGENCE AND DISABILITY – DysNet took part in the specific video conference organized by #EDF-European Disability Forum...

FOLLOW-UP – DysNet’s participation to the #EURORDIS Membership Meeting last May 25-27, 2023 in #Stockholm gave us he possibility, among...

DysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your...

Many thanks to Francesco Clemente, Engineer, Managing Director of #Prensilia www.prensilia.com who accepted our invitation to share his...

Time to get to grips with the topic of the new #RareBarometer survey: newborn screening! Simply put, newborn screening is the process of...

(May 25-27) in Stockholm was a great opportunity for me as a Representative of DysNet to meet friends and new people, learn a lot about...

On May 14th, 2022 #WSH On Saturday, May 14th, 2022, the #ThalidomideSociety celebrated a big, eventful event at the Heathrow Marriott...

CHEZ ASSEDEA IN PARIS – DysNet’s Chairman Claudio Pirola was invited to participate last May 7 to the meeting “La journée des familles...