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Oct 28, 2020
1 min

EDRIC is DysNet now

Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...

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Covid measures: 83% of rare disease patients’ care was disrupted

tobiasarndt

Oct 28, 2020
1 min

Covid measures: 83% of rare disease patients’ care was disrupted

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...

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tobiasarndt

Oct 28, 2020
1 min

Good read: Josie George story about chronic disease and Covid

In a moving account chronic disease patient Josie George tells hers story: "My personal lockdown has been much longer". Read here.

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