DysNet’s Chairman Claudio Pirola took part in CEF (Conference of European Federations) organized by EURORDIS in Paris last October 16-17,...

DYSNET’S GENERAL ASSEMBLY – Don’t miss the important appointments DYSNET organized for August 1during the General Assembly which will...

DYSNET represented by the Chair Claudio Pirola and the COO Tobias Arndt took part at EURORDIS’ conference in BRUSSELS last December 12...

#PARIS, October 7, 2023 – Many thanks to ’S Seine et Marne (including Paris Ile-de-France) Chairman and Board Member of #ASSEDEA who...

#PARIS, October 7, 2023 – Many thanks to Franck Brouillard, #HANDISPORT’S Seine et Marne (including Paris Ile-de-France) Chairman and...

IT WAS A HONOUR for DysNet’s Board to meet in a video conference Mr. Luca Sangiorgi, Director Rare Bone Disorders Dept. and Coordinator...

ARTIFICIAL INTELLIGENCE AND DISABILITY – DysNet took part in the specific video conference organized by #EDF-European Disability Forum...

FOLLOW-UP – DysNet’s participation to the #EURORDIS Membership Meeting last May 25-27, 2023 in #Stockholm gave us he possibility, among...

DysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your...

Many thanks to Francesco Clemente, Engineer, Managing Director of #Prensilia www.prensilia.com who accepted our invitation to share his...

Time to get to grips with the topic of the new #RareBarometer survey: newborn screening! Simply put, newborn screening is the process of...

(May 25-27) in Stockholm was a great opportunity for me as a Representative of DysNet to meet friends and new people, learn a lot about...

On May 14th, 2022 #WSH On Saturday, May 14th, 2022, the #ThalidomideSociety celebrated a big, eventful event at the Heathrow Marriott...

CHEZ ASSEDEA IN PARIS – DysNet’s Chairman Claudio Pirola was invited to participate last May 7 to the meeting “La journée des familles...

Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...

In a moving account chronic disease patient Josie George tells hers story: "My personal lockdown has been much longer". Read here.