Blog | Dysnet

CHEZ ASSEDEA IN PARIS

CHEZ ASSEDEA IN PARIS – DysNet’s Chairman Claudio Pirola was invited to participate last May 7 to the meeting “La journée des familles...

EDRIC is DysNet now

Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...

Covid measures: 83% of rare disease patients’ care was disrupted

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...

Good read: Josie George story about chronic disease and Covid

In a moving account chronic disease patient Josie George tells hers story: "My personal lockdown has been much longer". Read here.

CHEZ ASSEDEA IN PARIS

CHEZ ASSEDEA IN PARIS – DysNet’s Chairman Claudio Pirola was invited to participate last May 7 to the meeting “La journée des familles...

EDRIC is DysNet now

Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...

Covid measures: 83% of rare disease patients’ care was disrupted

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...