Good read: Josie George story about chronic disease and Covid In a moving account chronic disease patient Josie George tells hers story: "My personal lockdown has been much longer". Read here.
tobiasarndt Oct 28, 2020 1 min EDRIC is DysNet now Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...
tobiasarndt Oct 28, 2020 1 min Covid measures: 83% of rare disease patients’ care was disrupted "The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...
