FOLLOW-UP – DysNet’s participation to the #EURORDIS Membership Meeting last May 25-27, 2023 in #Stockholm gave us he possibility, among other goals achieved, to consolidate our relationship in respect of #ERN-European Reference Network. The contacts established on that occasion with EU ERN representatives led us to organize a specific meeting in Italy planned at the end of next September with persons and doctors who are responsible on this topic in Italy. A great step forward which will give the possibility to DysNet on one side to learn more about results and work in progress and on the other side to understand how our Association will be in a measure to support ERN activities starting from the experiences coming from the various countries represented by DysNet. Stay tuned! Details will follow. As to EURORDIS Meeting you can find more info here https://www.eurordis.org/eurordis-membership-meeting-emm.../
