Mission 1 · The international reference point

Knowledge, kept current.

Families and clinicians come to DysNet to find what is known, what is being studied, and where expertise lives. Each register below is maintained by a named volunteer and shows its last update. Current beats polished.

Research library

Curated publications, each with a plain-language summary and a link to the source.

Register 1 · updated August 2026

Ongoing studies

Studies recruiting or in progress, with status and contact for each.

Register 2 · updated August 2026

Researchers

Research teams working on limb difference around the world.

Register 3 · updated August 2026

Care centres

Reference and competence centres, in Europe and beyond, on a map.

Register 4 · updated August 2026

Understanding dysmelia

New to limb difference? Start here: what dysmelia is, and a plain-language guide to some forty conditions, sourced from Orphanet.