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Many individuals with dysmelia, along with their families and support groups across the world, have made discoveries about great resources, adaptations and medical treatments to help themselves, their children or their patients in managing their condition.DysNet wants to bring all that knowledge together in an accessible database so that everyone who needs to find out this type of information doesn't have to spend hours searching. Why reinvent the wheel over and over, when someone in a similar position somewhere else in the world can offer a solution?
We've also launched a community forum on RareConnect that is a safe, moderated environment to share experiences, knowledge and ideas with other people in your position across the globe.
If we haven't yet made contact with you or your group or organisation - don't wait!, [CONTACT] now and join the DysNet global community! Although we were established to assist people with congenital loss, we also welcome those who have lost limbs through amputation as a result of illness or trauma.
DysNet’s Chair Claudio Pirola interviews Paralympic Swimming Champion Alberto Amodeo. Born in 2001 at the age of 12 Alberto lost his right leg and suffered from severe injuries to his right arm due to an accident. A dialogue about expectations, determination, efforts, dreams, success. Many thanks Alberto for telling us your experience! We wish you all the best for your future!
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