About · The network

Member associations: the groups families belong to.

DysNet is a federation: our members are national associations of people with limb differences and their families. Find yours below, or bring your association in.

Our members, country by country

Australia

Austria

  • Contergan Austria

Belgium

Chile

France

Germany

Ireland

Italy

Netherlands

Norway

  • Den Norske Thalidomide Forening

Spain

  • AVITE

    Founding presidentJosé Riquelme López

    Vice-president and treasurerRafael Basterrechea Estella

    Contact: info@avite.org

    avite.org ↗

Sweden

FfdN, Föreningen för de Neurosedynskadade, is the Swedish Thalidomide Society: a national association in Solna (thalidomide.org, also reachable at ffdn.se) with two regional associations, Stockholm and Väst/Skåne. EX-Center, which FfdN runs with Ottobock Care, is a rehabilitation centre rather than an association, and has its place in our care centres register.

United Kingdom

01 · Join

Two ways in.

Full member

For associations ready to take part in governance: voting rights, a voice at the AGM, and a duty to feed the registers. Write to the board for the terms of membership.

Associate (observer)

For associations that want to support one mission, typically the registry, without governance duties, returning to full membership when capacity allows.

Write to us about membership

Member associations are also encouraged to register in Orphanet’s directory of patient organisations, where families and clinicians across Europe and beyond search for support groups. DysNet is listed there as a federation: see our entry.