About · The network
The associations families belong to.
DysNet is a federation: our members are national associations of people with limb differences and their families. Find yours below, or bring your association in.
Australia
- Aussiehands
- Thalidomide Australia ↗
- Limbs 4 Life ↗
Austria
- Contergan Austria
Belgium
- A.V.S.B.
- Dysmelia ASBL ↗
Chile
- Vitachi – Talidomida en Chile
France
- Assédea ↗
- Syndrome de Poland France
Germany
- Contergan NRW
- HICOHA Hamburg
- Interessenverband Contergangeschädigter
- Contergangeschädigte Hessen ↗
Ireland
- Irish Thalidomide Survivors Society
Italy
- Raggiungere ↗
- Thalidomidici Italiani (TAI onlus)
- V.I.TA – Vittime Talidomide Italia ↗
- AISP – Sindrome di Poland
Netherlands
Norway
- Den Norske Thalidomide Forening
Spain
Sweden
- FfdN
- FfdN Stockholm
- FfdN Väst
- Ex-Center ↗
- Svensk Dysmeliförening ↗
United Kingdom
United States
- STEPS
01 · Join
Two ways in.
Full member
For associations ready to take part in governance: voting rights, a voice at the AGM, and a duty to feed the registers. Annual fee €50.
Associate (observer)
For associations that want to support one mission, typically the registry, without governance duties or fees, returning to full membership when capacity allows.
Member associations are also encouraged to register in Orphanet’s directory of patient organisations, where families and clinicians across Europe and beyond search for support groups.