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DysNet Board and Officers

Chair

Claudio Pirola

Claudio, DysNet's Board Chair, joined RAGGIUNGERE in May 1999, where he focused on consolidating a synergic approach with Institutions, Associations, Hospitals, Research Centers, Athletes.  Since he participated in DysNet's foundation meeting in 2012 he supports DysNet in reinforcing our precious European network helping to spread awareness, knowledge and assistance based on the "Leitmotiv" of inclusion.

Deputy Chair

Björn Håkansson

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Vice-chair Björn is the President of FfdN (Föreningen för den Neurosedynskadade), the Swedish group for thalidomide survivors.  He was born with disabilities caused by thalidomide.  Björn is an experienced team leader and manager of a dysmelia patient group.  He also co-founded the Ex-Center - Europe's only specialist centre devoted to supporting the health needs of dysmelia patients.

Secretary

Monika

Eisenberg-Geginat

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Monika is one of almost 3000 German thalidomide survivors.  Formerly, she was the head teacher of a school for disabled children and now works as a family therapist.  She specialises in the protection of disabled children and represents the interests of disabled employees in the town of Wesseling, Germany.

Treasurer

Sal Giambruno

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Salvatore is a long-time board member and past president of Raggiungere, , the Italian Association for children with limb deficiencies, and past president of LEDHA, a federation of 32 associations representing various disability groups in Italy.  Now retired, he has mainly worked in sales management roles in large multinational electronics companies. He is the parent of a girl with dysmelia.

Member

Michi Moik

Michaela is a thalidomide survivor and one of the founders of the Austrian Thalidomide self-help group, Selbsthilfegruppe der Contergan- und Thalidomidgeschädigten Österreichs.  She worked as a social worker in the Youth Department of Vienna and has three children.

Chief Operating Officer

Tobias Arndt

Tobias is an IT expert and researcher with a background in online portals.  As a writer he published a range of articles in major magazines.  He is the author of books on electronic commerce and "b2b Marketplaces".  Tobias has supported thalidomide projects and campaigns in Britain, Germany and Belgium since 2007.

DysNet Ideell Förening

Vilohemsvägen, 12c
26653 Vejbystrand
SWEDEN

info@dysnet.org

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