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Covid measures: 83% of rare disease patients’ care was disrupted

Updated: Feb 9, 2021

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have been postponed. I’m really waiting for that. I’m in a lot of pain right now. In addition, I have the feeling that I am on my own.” A rare disease patient




Health care was disrupted and many patients suffered from uncertainty and fear. However, many rare disease patients reported encourageing experiences in stregthening family ties and with e-health.


Here are the key findings from Rare Disease Europe.


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Amelia Ella
Amelia Ella
Jan 25, 2023

The relaxing environment of the Chandrabhaga Beach, formerly Chandrabhaga was considered a place of natural cure for lepers. According to mythological stories, Chandrabhag is the daughter of a sage. she is very beautiful and caught the attraction of the Sun God with her magical beauty. This is the place where you get an opportunity to visualize the Sun and moon at a time during Sunrise and Sunset. Set in the village of Chandrabhaga in the Puri District of Orissa, Chandrabhaga Beach is considered one of the finest beaches along the eastern coast of India. The beach is located at a distance of 3 km from the World Heritage Site – Konark Temple.

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Billi Jean
Billi Jean
Dec 08, 2022

Thanks!

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