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EURORDIS - European Rare Diseases Organisation

Time to get to grips with the topic of the new #RareBarometer survey: newborn screening! Simply put, newborn screening is the process of systematically testing newborns just after birth for certain diseases which are not detectable in the first few weeks of life. What do you think are the possible benefits and challenges to screening for rare diseases at birth? To share your opinions on newborn screening take the Rare Barometer survey! Available in 24 languages!

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DysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your voice heard by participating here:

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