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Stockholm - EURORDIS Membership Meeting 2023

Updated: Jun 7

(May 25-27) in Stockholm was a great opportunity for me as a Representative of DysNet to meet friends and new people, learn a lot about disability (focus on how to live the various ages with a rare disease), consolidate synergic approaches and projects with other EU Associations. Special thanks to DysNet's Board Member Marie Wikström (Chairwoman of Ffdn Stockholm) for giving me the possibility - among other - to visit the qualified prosthetic EX-Center (Marie is Coordinator of the Rehab Team). A great experience in Stockholm. Beyond any prejudice. More infos at and

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DysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your voice heard by participating here:

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