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Finding out a child is limb different generates a multitude of questions for parents.  We know answers to these questions are scattered across the web.Before we built the site we conducted a survey and found parents taking on the care of a child with limb difference struggled to get information. We also learned that medical staff involved didn't know where to send families to find out what it's like to live with a limb difference. As technology improves, more and more parents are discovering their baby may be limb different before they're born. 

Our site is here to provide answers and access to a community who can share their own experiences.  We believe that women have a right to determine what happens to their bodies.  Whatever decision a woman makes, if it's an informed decision then it's going to be the right one.  We're absolutely not a pro-life organisation.

There's lots of information on this site, but if you have a question which isn't answered then please do contact us.  It might be something other people want to know and we've missed it.  If you are personally affected - you might consider writing something for us or recording your own video so we can share this too.

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Björn Håkansson, our friend and Dysnet Board Member, passed away! He was a visionary, strong character, fighter and one of the founders of DysNet/EDRIC. He always had great ideas and was a successful negotiator.  MORE

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