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DysNet’s AGM-Annual General Meeting took place on October 29. Although still on line and not yet in person, the discussion was very proactive and led to the creation of different sub-committees focused on various topics we are now working on.

 

The AGM also elected the new Board which is now composed by representatives of seven Countries: Australia, Austria, France, Germany, Italy, Sweden and the United Kingdom (possible co-opt for Board Member in the course of this year).

 

Many thanks in particular to Mr. Benoît Faure/Chairman of Assedea France who joined the Board and Reach UK who are looking into joinign the Board later this year. In that case they will be co-opted and stand for election in next years Annual General Meeting.

 

In the course of the subsequent Board meeting of November 3 the various functions were established as follow:

 

Mr. Claudio PIROLA (Italy), Chairman

Mrs. Michaela MOIK (Austria) Vice Chairwoman

Mr. Salvatore GIAMBRUNO (Australia) Treasurer

Mrs. Monika EISENBERG (Germany )Secretary

Mr. Björn HÅKANSSON (Sweden) Board Member

Mr. Benoît FAURE (France) Board Member

 

Mr. Tobias Arndt (Belgium) was reconfirmed as COO.

Assedea/France will support specifically (and not only) for communication.

 

The Board thanks the whole community for their  trust.

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DysNet is the global network connecting anyone who is personally or professionally affected by congenital limb deficiency.  The site is inclusive, communicative and collaborative.  This is the place where you can find information, contribute your own thoughts and ideas and join the conversation.

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Dysmelia is the generic term for all types of congenital limb differences - genetic, environmentally-induced or caused by an isolated fetal development problem.  It is a rare condition with varying degrees and types of congenital limb damage and affects about 5 people in every 10 000.

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We are developing a network of experts - the Dysmelia Expert Forum - who can help answer any questions you might have about dysmelia or living with limb loss.  When you join our community, you will get the opportunity to have your medical or practical questions answered by experts in the field.

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Help us to develop a strong global voice for dysmelia.  As an individual you can register on the DysNet website - the place to access information - and the multi-lingual DysNet RareConnect community - a safe, moderated space to connect with your peers.  As an organisation, you can join DysNet.

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