tobiasarndtOct 28, 20201 min readEDRIC is DysNet nowUpdated: Oct 29, 2020Hi everybody - EDRIC decided to get renamed into DysNetHere are the reasons- EDRIC as for European Dysmelia Reference Infromation Centre - we felt it was too long and too complicated- DysNet the name of our website has been established as a recognisable brand over the last years - We wanted to reach out to more than just Europe#bloggingtips #WixBlog
Hi everybody - EDRIC decided to get renamed into DysNetHere are the reasons- EDRIC as for European Dysmelia Reference Infromation Centre - we felt it was too long and too complicated- DysNet the name of our website has been established as a recognisable brand over the last years - We wanted to reach out to more than just Europe#bloggingtips #WixBlog
Rare Barometer Survey - get involedDysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your voice heard by participating here: tiny.cc/survey_NBS_RD
tobiasarndt2 days ago1 minFollow-Up Eurordis membership meetingFOLLOW-UP – DysNet’s participation to the #EURORDIS Membership Meeting last May 25-27, 2023 in #Stockholm gave us he possibility, among...
tobiasarndtJul 141 minRare Barometer Survey - get involedDysNet supports Eurordis Rare Barometer Survey. This time screening for rare diseases at birth is highlighted in the survey. Make your...