(May 25-27) in Stockholm was a great opportunity for me as a Representative of DysNet to meet friends and new people, learn a lot about...

On May 14th, 2022 #WSH On Saturday, May 14th, 2022, the #ThalidomideSociety celebrated a big, eventful event at the Heathrow Marriott...

CHEZ ASSEDEA IN PARIS – DysNet’s Chairman Claudio Pirola was invited to participate last May 7 to the meeting “La journée des familles...

Hi everybody - EDRIC decided to get renamed into DysNet Here are the reasons - EDRIC as for European Dysmelia Reference Infromation...

"The first weeks of COVID I had fears. Suddenly there was no longer much help or contact. Some operations that should have been done have...

In a moving account chronic disease patient Josie George tells hers story: "My personal lockdown has been much longer". Read here.